Welcome 8:00am Brian M. Culley, Conference Chair
Opening Remarks 8:15am Welcome Video from Deval Patrick, Board Member, Global Blood Therapeutics, Inc.

Ted W. Love, M.D., Chief Executive Officer, Global Blood Therapeutics, Inc.

Panel 1: Burden and Cost of SCD in U.S.
Presentation 8:30am-8:45am Mary Hulihan, DrPH, Health Scientist, Epidemiology and Surveillance Branch, Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, CDC


8:45am-9:00am Julie Kanter-Washko, M.D.Associate Professor and Director Sickle Cell Disease Research and the Lifespan Comprehensive Sickle Cell Center, Medical University of South Carolina
Panel 2: Role of Novel Clinical Endpoints in New Drug Development
Moderator 9:05am-9:45am Liana Moussatos, Ph.D., Managing Director and Senior Research Analyst, Wedbush Securities
Panelists Ann Farrell, M.D., ​ Division Director, Division of Hematology Products, Office of Hematology and Oncology Drug Products at the Center for Drug Evaluation and Research, U.S. Food and Drug Administration

Wally R. Smith, M.D., Professor, Director of the Adult Sickle Cell Program, Virginia Commonwealth University

Panel 3: Patient and Caregivers:  Daily Experience of SCD


9:45am-10:25am Mattie A. Robinson, M.S., M.A., Founder, Micromattie Consulting
Panelists Lakiea Bailey, Ph.D., Executive Director, Sickle Cell Community Consortium

Gary A. Gibson, President & CEO, The Martin Center Sickle Cell Initiative

TaLana Hughes, MPH, Executive Director, Sickle Cell Disease Association of Illinois (SCDAI) and Tiahna Hughes, patient advocate

Donnette Carroll, President, Sickle Cell Thalassemia Patients Network (SCTPN)

Video premiere Video featuring Jeffrey Zuttah, patient advocate
Break 10:25am10:40am
Panel 4: Hemolysis and Its Clinical Consequences
Moderator 10:40am-11:10am Ritu Baral, Senior Biotechnology Analyst and Managing Director, Cowen & Company
Panelists Victor R. Gordeuk, M.D.Professor of Medicine, Director, Sickle Cell Center, University of Illinois at Chicago

Kenneth Ataga, MBBS, Professor of Medicine and Director of the Comprehensive Sickle Cell Program, University of North Carolina at Chapel Hill


Panel 5: Innovative SCD Adult Care Models
Moderator 11:10am-12:00pm Brian M. Culley, Conference Chair
Panelists Biree Andemariam, M.D., Associate Professor of Medicine, University of Connecticut Health; Founding Director, New England Sickle Cell Institute; Chief Medical Officer, Sickle Cell Disease Association of America, Inc.

Sophie M. Lanzkron, M.D., MHSDirector of the Sickle Cell Center for Adults, Associate Professor Medicine and Oncology, Division of Hematology, Johns Hopkins University School of Medicine

Diane Nugent, M.D., Clinical Professor and Chief of Hematology, Dept. of Pediatrics, UC Irvine School of Medicine; Founder, Medical Director, Center for Inherited Blood Disorders

Betty S. Pace, M.D., Professor of Pediatrics, Francis J. Tedesco Distinguished Chair and Interim Chief, Division of Pediatric Hematology/Oncology, Augusta University Medical College of Georgia

Mary E. Brown, President & CEO, Sickle Cell Disease Foundation of California

Karen L. Proudford, Ph.D., President, William E. Proudford Sickle Cell Fund

Lunch 12:00pm-1:00pm
American Society of Hematology (ASH)
Sickle Cell Disease Initiative Update 1:05pm-1:20pm LaTasha Lee, Ph.D., MPH, Manager, Sickle Cell Policy and Programs, American Society of Hematology
Corporate Presentations (1:20pm-4:30pm)
ApoPharma 1:20pm-1:40pm Fernando Tricta, M.D., MS.C., Vice President of Medical Affairs
Emmaus Life Sciences 1:40pm-2:00pm Mark Diamond, Director, Sales and Marketing
Global Blood Therapeutics (GBT) 2:00pm-2:20pm Ted W. Love, M.D., Chief Executive Officer
bluebird bio (BLUE) 2:20pm-2:40pm Jeff Walsh, Chief Financial & Strategy Officer
Modus Therapeutics 2:40pm-3:00pm Ellen K. Donnelly, Ph.D., Chief Executive Officer
Break 3:00pm-3:10pm  
EpiDestiny 3:10pm-3:30pm Santhosh Vadivelu, Ph.D., President and Chief Executive Officer
Imara 3:30pm-3:50pm James McArthur, Ph.D., Founder, President and Chief Executive Officer
Bioverativ (BIVV) 3:50pm-4:10pm Bill Hobbs, Executive Medical Director, Clinical Development
Prolong Pharmaceuticals, Inc. 4:10pm-4:30pm Glenn Kazo, President

Closing Remarks

4:30pm Brian M. Culley, Conference Chair


Conference Presenter and Sponsor Alumni

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