Welcome! The Annual Sickle Cell Disease Therapeutics Conference (SCDTC) is a forum to discuss the latest advancements and future trends for treating patients with sickle cell disease.
The Annual Sickle Cell Disease Therapeutics Conference is a forum to discuss the latest advancements and future trends for treating patients with sickle cell disease. Conference attendees will hear presentations from healthcare companies, key opinion leaders, patients, policy makers and others.
Agenda subject to change
| Welcome | 9:00am – 9:10am | Beverley Francis-Gibson, B.A., M.A. President & Chief Executive Officer Sickle Cell Disease Association of America, Inc. |
| Keynote Speaker | 9:10am – 9:25am | The Honorable Robin Kelly Chair, Congressional Black Caucus Health Brain Trust United States House of Representatives |
Session 1: Clinical Consequences of SCD – Impact on the Brain & Cognitive Function
| Moderator | 9:25am – 10:30am | Ken Bridges M.D. Vice President of Medical Affairs Global Blood Therapeutics |
| Presentation | Overview of Anemia and Organ Damage: Greg Kato, M.D. Professor of Medicine, Director of the Adult Sickle Cell Center of Excellence for the UPP Division of Hematology-Oncology University of Pittsburgh Medical Center |
|
| Presentation | Cerebrovascular-Brain Injury: Jeremie Estepp, M.D. Medical Director, Clinical Translation Program in Hematology St. Jude Children’s Research Hospital |
|
| Presentation | Impact on Neurocognition: Allison King, M.D., M.P.H., Ph.D. Associate Professor of Occupational Therapy, Pediatrics, Medicine, Surgery (Prevention and Control) and Education Washington University School of Medicine |
BREAK (10:30AM – 10:50AM)
Session 2: SCD Patient and Caregiver Discussion of Hot Topics in Sickle Cell Disease
| Moderator | 10:50AM – 11:30AM | Biree Andemariam, M.D. Associate Professor, Hematology/Oncology Director, New England Sickle Cell Institute, University of Connecticut Chief Medical Officer, SCDAA |
| Panelists | Velvet Brown–Watts, Founder-Chairperson, Supporters of Families With Sickle Cell Disease Jew-EL Darbone, Sickle Cell Patient Advocate Andre Harris, CHW, Sickle Cell Patient Advocate Hertz Nazaire (Naz), Sickle Cell Patient Advocate |
Session 3: SCCC update
| Presentation | 11:30AM – 12:00PM | Lakiea Bailey, Ph.D. Founder, Sickle Cell Community Consortium |
lunch (12:00pm – 12:45pm)
Session 4: ASH research collaborative update
| Presentation | 12:45PM – 1:00PM | Chuck Chesson, Ph.D. Director, Sickle Cell Disease Clinical Trials Network |
company presentations
| Global Blood Therapeutics, Inc. |
1:00PM – 1:25PM | Ted W. Love, M.D. President & Chief Executive Officer |
| Addmedica | 1:25PM – 1:50PM | Bernard Dauvergne, Pharm.D. Executive Director |
| CRISPR/Vertex | 1:50PM – 2:15PM | Krista McKerracher V.P. & Head, Hemoglobinopathy Programs |
BREAK (2:15PM – 2:35PM)
company presentations
| Cyclerion | 2:35PM – 3:00PM | Chris Wright, M.D., Ph.D. Chief Medical Officer |
| Emmaus Life Sciences, Inc. | 3:00PM – 3:25PM | Darrell W. Harrington, M.D., M.A.C.P. Chief Medical Officer |
| Imara, Inc. | 3:25PM – 3:50PM | Rahul D. Ballal, Ph.D. Chief Executive Officer |
| Sanofi | 3:50PM – 4:15PM | Alexandra Hicks, Ph.D. Executive Director, Hemoglobinopathies |
| Closing | 4:15PM – 4:25PM | Beverley Francis-Gibson, B.A., M.A. President & Chief Executive Officer Sickle Cell Disease Association of America, Inc. |
reception (4:30pm – 5:30pm)
HOST
Beverley Francis-Gibson, B.A., M.A.
President & Chief Executive Officer
Sickle Cell Disease Association of America, Inc.
KEYNOTE SPEAKER
The Honorable Robin Kelly
Chair
Congressional Black Caucus Health Brain Trust
United States House of Representatives
PANELISTS AND SPEAKERS
Biree Andemariam, M.D.
Associate Professor, Hematology/Oncology
Director, New England Cell Institute, University of Connecticut
Chief Medical Officer, SCDAA
Dr. Lakiea Bailey, Ph.D.
Founder
Sickle Cell Community Consortium
Velvet Brown-Watts
Founder-Chairperson
Supporters of Families with Sickle Cell Disease
Dr. Chuck Chesson, Ph.D.
Director
Sickle Cell Disease Clinical Trials Network
Jew-EL Darbone
Sickle Cell Patient Advocate
Jeremie Estepp, M.D.
Medical Director
Clinical Translation Program in Hematology
St. Jude Children’s Research Hospital
Andre Harris, CHW
Sickle Cell Patient Advocate
Greg Kato, M.D.
Professor of Medicine
Director of the Adult Sickle Cell Center of Excellence for
the UPP Division of Hematology-Oncology
University of Pittsburgh Medical Center
Allison King, M.D., M.P.H., Ph.D.
Associate Professor of Occupational Therapy, Pediatrics,
Medicine, Surgery (Prevention and Control) and Education
Washington University School of Medicine
Hertz Nazaire (Naz)
Sickle Cell Patient Advocate
