2019 Sickle Cell Disease Therapeutics Conference

Welcome!  The Annual Sickle Cell Disease Therapeutics Conference (SCDTC) is a forum to discuss the latest advancements and future trends for treating patients with sickle cell disease.

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ABOUT THE CONFERENCE

The Annual Sickle Cell Disease Therapeutics Conference is a forum to discuss the latest advancements and future trends for treating patients with sickle cell disease.  Conference attendees will hear presentations from healthcare companies, key opinion leaders, patients, policy makers and others.

SPONSORSHIP
CONFERENCE SCHEDULE
Agenda subject to change
 Welcome 9:00am – 9:10am Beverley Francis-Gibson, B.A., M.A.
President & Chief Executive Officer
 
Sickle Cell Disease Association of America, Inc.
 Keynote Speaker 9:10am – 9:25am The Honorable Robin Kelly
Chair, Congressional Black Caucus Health Brain Trust

United States House of Representatives
Session 1: Clinical Consequences of SCD – Impact on the Brain & Cognitive Function
 Moderator 9:25am – 10:30am Ken Bridges M.D.
Vice President of Medical Affairs
Global Blood Therapeutics
 Presentation Overview of Anemia and Organ Damage:
Greg Kato, M.D.
Professor of Medicine, Director of the Adult Sickle Cell Center of Excellence for the UPP Division of Hematology-Oncology
University of Pittsburgh Medical Center
 Presentation Cerebrovascular-Brain Injury:
Jeremie Estepp, M.D.
Medical Director, Clinical Translation Program in Hematology
St. Jude Children’s Research Hospital
 Presentation Impact on Neurocognition:
Allison King, M.D., M.P.H., Ph.D.
Associate Professor of Occupational Therapy, Pediatrics, Medicine, Surgery (Prevention and Control) and Education
Washington University School of Medicine
BREAK (10:30AM – 10:50AM)
Session 2: SCD Patient and Caregiver Discussion of Hot Topics in Sickle Cell Disease
 Moderator 10:50AM – 11:30AM Biree Andemariam, M.D.
Associate Professor, Hematology/Oncology
Director, New England Sickle Cell Institute, University of Connecticut
Chief Medical Officer, SCDAA
 Panelists Velvet Brown–Watts, Founder-Chairperson, Supporters of Families With Sickle Cell Disease
Jew-EL Darbone, Sickle Cell Patient Advocate
Andre Harris, CHW, Sickle Cell Patient Advocate
Hertz Nazaire (Naz), Sickle Cell Patient Advocate
Session 3: SCCC update
 Presentation 11:30AM – 12:00PM Lakiea Bailey, Ph.D.
Founder, Sickle Cell Community Consortium
lunch (12:00pm – 12:45pm)
Session 4: ASH research collaborative update
 Presentation 12:45PM – 1:00PM Chuck Chesson, Ph.D.
Director, Sickle Cell Disease Clinical Trials Network
company presentations
 Global Blood
Therapeutics, Inc.
1:00PM – 1:25PM Ted W. Love, M.D.
President & Chief Executive Officer
 Addmedica 1:25PM – 1:50PM Bernard Dauvergne, Pharm.D.
Executive Director
 CRISPR/Vertex 1:50PM – 2:15PM Krista McKerracher
V.P. & Head, Hemoglobinopathy Programs
BREAK (2:15PM – 2:35PM)
company presentations
 Cyclerion 2:35PM – 3:00PM Chris Wright, M.D., Ph.D.
Chief Medical Officer
 Emmaus Life Sciences, Inc. 3:00PM – 3:25PM Darrell W. Harrington, M.D., M.A.C.P.
Chief Medical Officer
 Imara, Inc. 3:25PM – 3:50PM Rahul D. Ballal, Ph.D.
Chief Executive Officer
 Sanofi 3:50PM – 4:15PM Alexandra Hicks, Ph.D.
Executive Director, Hemoglobinopathies
 Closing 4:15PM – 4:25PM Beverley Francis-Gibson, B.A., M.A.
President & Chief Executive Officer
 
Sickle Cell Disease Association of America, Inc.
reception (4:30pm – 5:30pm)
2019 HOST, SPEAKERS AND PANELISTS

HOST

Beverley Francis-Gibson, B.A., M.A.
President & Chief Executive Officer
Sickle Cell Disease Association of America, Inc.

KEYNOTE SPEAKER

The Honorable Robin Kelly
Chair
Congressional Black Caucus Health Brain Trust
United States House of Representatives


 PANELISTS AND SPEAKERS

Biree Andemariam, M.D.
Associate Professor, Hematology/Oncology
Director, New England Cell Institute, University of Connecticut
Chief Medical Officer, SCDAA


Dr. Lakiea Bailey, Ph.D.
Founder
Sickle Cell Community Consortium


Velvet Brown-Watts
Founder-Chairperson
Supporters of Families with Sickle Cell Disease


Dr. Chuck Chesson, Ph.D.
Director
Sickle Cell Disease Clinical Trials Network


Jew-EL Darbone
Sickle Cell Patient Advocate


Jeremie Estepp, M.D.
Medical Director
Clinical Translation Program in Hematology
St. Jude Children’s Research Hospital


Andre Harris, CHW
Sickle Cell Patient Advocate


Greg Kato, M.D.
Professor of Medicine
Director of the Adult Sickle Cell Center of Excellence for
the UPP Division of Hematology-Oncology
University of Pittsburgh Medical Center


Allison King, M.D., M.P.H., Ph.D.
Associate Professor of Occupational Therapy, Pediatrics,
Medicine, Surgery (Prevention and Control) and Education
Washington University School of Medicine


Hertz Nazaire (Naz)
Sickle Cell Patient Advocate

VIDEOS
2019 SPONSORS
2019 PRESENTING COMPANIES
CONTACT US

If you have any questions, please email us at scdconference@gmail.com.